Le Registre du Cancer de l’Enfant dispose d’un comité consultatif stratégique (Strategic Advisory Board) et d’un groupe d’experts (Pool of Experts). Leurs membres se mettent à la disposition du registre à titre bénévole, ce dont le Registre du Cancer de l’Enfant tient à les remercier sincèrement.
Strategic Advisory Board (direction stratégique):
Le comité consultatif stratégique assure un rôle de conseil et de soutien stratégique au Registre du Cancer de l’Enfant.
Prof. Angèle Gayet-Ageron, MD, Director of the Institute of Social and Preventive Medicine at the University of Bern,
Expert Epidemiology and Public Health
Eliane Rohner, PD, MD, MSc, Head of Cancer Research Group at the Institute of Social and Preventive Medicine at the University of Bern
Prof. Nicolas von der Weid, MD, University Children’s Hospital Basel (UKBB), Deputy Head Physician, Head of Haematology/Oncology
President Association of Swiss Childhood Cancer Patient-Organisations (KKS)
Dr. Cécile M. Ronckers (PhD), Head, Division of CAYA Cancer Survivorship Research, National Cancer Prevention Center (NCPC), Hopp Children’s Cancer Center Heidelberg (KitZ)
(till June 2025: German Childhood Cancer Registry, Head of Division of Childhood Cancer Epidemiology)
Expert Childhood Cancer, Radiation and Cancer Epidemiology, Cancer Survivorship
Pool of Experts (conseil spécialisé et scientifique):
Les membres du groupe d’experts mettent leur expertise professionnelle à la disposition du comité consultatif stratégique et du conseil d’administration du Registre du Cancer de l’Enfant.
| Expert | Field of Expertise |
| Prof. Dr. med. Marc Ansari | Liver Tumours, Stem Cell Transplant, Pediatric Oncology |
| Rebecca Bächtold | Pediatric Oncology Nursing (Insel) Pediatric Palliative Care Nursing (Allani) |
| Dr. med. Andrea Bordoni | Head of the Cantonal Cancer Registry Ticino, Medical Director, Ticino Screening Program Centre |
| Dr. med. Willemijn Breunis | Pediatric Oncology, Sarcomas, Solid Tumors |
| PD Dr. med. André O. von Bueren | CNS Tumours, Pediatric Neuro-Oncology |
| PD MER Dr. Jean-Luc Bulliard | Epidemiology, Biostatistics, Cancer Registries Vaud and Neuchâtel-Jura |
| Paul Castle | Patient advocate |
| Prof. Dr. med Rhoikos Furtwängler | Pediatric Oncology and Hematology |
| Prof. Dr. med. Stephanie Gros | Consultant Pediatric Surgery Research group: Molecular strategies in pediatric surgery |
| Prof. Dr. med. Tayfun Güngör | Stem Cell Transplantation, Children’s Hospital Zürich, Eleonoren Foundation |
| Sandra Hofer | Co-President: Kinderkrebshilfe Schweiz, Patient-Representation Childhood and Adolescent Cancers in Switzerland |
| PD Dr. med. Dr. phil. Benjamin Kasenda | Oncology and Hematology (adults), Lymphoma, Digitalisation, Clinical Epidemiology |
| Rafaela Lustenberger | Co-President: Kinderkrebshilfe Schweiz, Patient-Representation Childhood and Adolescent Cancers in Switzerland |
| Prof. Dr. Gisela Michel | Psychology, Health and Social Behaviour, Cancer aftercare |
| Rahel Morciano | President Patient-Representation Childhood and Adolescent Cancers in Switzerland: ARFEC (Association Romande des Familles d’Enfants atteints d’un Cancer) |
| Dr. med. S. Mohsen Mousavi | Eastern Switzerland Cancer Registry (SG, AR, AI, TG, GL and FL) |
| Isabelle Lamontagne-Müller | Director SPOG Coordinating Center, Clinical cancer research for children and acolescents in Switzerland |
| Prof. Dr. med. Jakob Passweg | Adult Hematology, Hemato-Oncology |
| Prof. Dr. med. Marc Pfister | Pediatric Pharmacology, Systems Pharmacology and Pharmacometrics |
| Prof. Dr. med. Dr. phil. Raffaele Renella | Head of Pediatric Hemotology-Oncology CHUV Lausanne, Neuroblastoma, Bone marrow failure and Myelodysplasia, Cancer predisposition syndromes |
| Prof. Dr. med. MSc Katrin Scheinemann | CNS Tumours, Pediatric Hemato-Oncology, Cancer, Survivorship, Transition and aftercare, AYA Oncology |
| Dr. med. Freimut Schilling | Paediatrics and adolescent medicine, especially paediatric oncology-haematology |
| Dr. med. Christina Schindera | Pediatric Oncology / Hematology |
| Dr. med. Katharina Staehelin | Cancer registration and epidemiology (adults), director of the Swiss National Agency for Cancer Registration (NACR) |
| Dr. Eva Steliarova-Foucher | Cancer Surveillance, International Agency for Research on Cancer (IARC), Childhood Cancer Awareness and Research Evidence, Epidemiology International |
| Susanne Studiger | Vizepräsidentin Kinderkrebs Schweiz, Leitung Elterngruppe Aarau der Kinderkrebshilfe Schweiz |
| Dr. med. Eva Maria Tinner | FMH Kinder- und Jugendmedizin, Schwerpunkt pädiatrische Onkologie und Hämatologie Oberärztin Pädiatrische Palliative Care |
| Dr. med. Nicolas Waespe | Pediatric Oncology, Second Primary Cancers, Rare Tumors, Genetics, Predisposition |
| Prof. Dr. Marcel Zwahlen | Expert Epidemiology Former Director a.i. of the Institute for Social and Preventive Medicine at the University of Bern |